• Josh

WELCOME!

Updated: May 18, 2020




I was diagnosed with Paroxysmal Nocturnal Hemoglobinuria (PNH) in May of 2014. I believe the date was May 22— this year will be six years. Six years as a rare disease patient represents a journey that I grow more proud of every day. Learning to live with PNH has been anything but easy. 130+ treatments in, I have become more comfortable with this new normal. It has taken a long time to get to this point. Day Fifteen is a blog my wife and I have created to share about our experiences with PNH. I have written multiple “introduction” entries, but have scrapped them all as no words seem to describe the life change that comes with a rare disease diagnosis. (Insert big bag of emotions here)- that’s the best I can do. This has been a long time coming, so loudly I say, WELCOME!!!!!!! We are so glad that you are here and we hope that you share the beginnings of our story with others so we can begin making connections. Welcome, Welcome, Welcome!







75 views0 comments

Recent Posts

See All

©2020 *DISCLAIMER Under no circumstances should this blog be used to diagnose, treat or research paroxysmal nocturnal hemoglobinuria (PNH) or any other disease or illness. Day Fifteen LLC is not providing any medical, expert or legal advice for any persons but rather Day Fifteen LLC is only stating their own opinions and their own experiences. Day Fifteen LLC does not claim to share the opinions or beliefs with any other entity or organization written about or discussed on this website. If you have any questions or concerns regarding your health contact your physician and health care providers.