A rare disease blog || life with paroxysmal nocturnal hemoglobinuria



Paroxysmal nocturnal hemoglobinuria (PNH) is a rare blood disease. PNH causes a patient's blood to break down due to missing proteins on the patient's blood cells. PNH can cause patients to have low blood counts (anemia), blood clots, pain, and dark urine as well as other symptoms. This is the very short description of PNH. It is rare and it is complicated.

The following links will provide an in depth explanation of PNH as written by The National Organization for Rare Disorders(NORD) and The Aplastic Anemia and MDS International Foundation.

I encourage everyone to read and share this website with others to build awareness of PNH and help me connect with other rare disease patients.



Hi! I’m Josh. Founder of Day Fifteen, husband, father, registered nurse, surfer, rare disease patient. Diagnosed with paroxysmal nocturnal hemoglobinuria (PNH) in 2014. 

And I’m Kristy! Co-founder, wife to Josh, supporter, hot mess boy mama, nurse, yogi & photographer to name a few. I’m here to help. My purpose for this business is to find different ways to help support people who have chronic conditions & find ways to provide helpful support to their families! 

Welcome to our beautifully chaotic little story, we're so glad you stopped by!



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©2020 *DISCLAIMER Under no circumstances should this blog be used to diagnose, treat or research paroxysmal nocturnal hemoglobinuria (PNH) or any other disease or illness. Day Fifteen LLC is not providing any medical, expert or legal advice for any persons but rather Day Fifteen LLC is only stating their own opinions and their own experiences. Day Fifteen LLC does not claim to share the opinions or beliefs with any other entity or organization written about or discussed on this website. If you have any questions or concerns regarding your health contact your physician and health care providers.